Patients Helping Patients Help Doctors Help Patients
Posted by GI Monitor
by Brett Shamosh
After we recently launched “Socialize”, our social component of GI Monitor (mobile disease management app for Crohn’s and Ulcerative Colitis), we noticed some extraordinary events. Conversations were happening as patients were experiencing symptoms and logging them in real-time. Below is a very simple real world example of the potential for this type of combination.
Use of a mobile tool to track symptoms and meds led "carolgodschild" to notice that her symptoms and MyQOL score worsened when tapering from 40mg of prednisone to 10mg of prednisone. Upon noticing the worsening symptoms, "carolgodschild" wrote a quick post to share the experience with fellow GI Monitor users. Reactions revealed that other users had experienced similar regression when tapering prednisone at those dosage levels. I jumped into the conversation as well to explain that my doctor and I discovered I had a 15mg tolerance to prednisone. An hour and fifteen minutes after the original post, "carolgodschild" was armed with questions for her doctor and posted “Thanks y’all. I’ll call him now.” See part of this thread below. UPDATE: "carolgodschild" called her doctor and realize it was a communication breakdown. Per the doctor, (s)he was supposed to be tapering by 10mg at a time.
Prior to the advent of mobile and social technologies, how long would it have taken "carolgodschild" to:
1. Realize her worsening symptoms
2. Connect the worsening symptoms with a medication change
3. Get educated
4. Take action
This is just one example of how the combination of mobile monitoring and social activity leads to action.